Measures | ASCQ-Me
The development of ASCQ-Me measures used a wide range of qualitative and quantitative research methods similar to those used for the Patient Reported Outcomes Measurement Information System (PROMIS), an NIH Common Fund initiative. Like PROMIS, ASCQ-Me uses computer adaptive testing (CAT) technology and item response theory (IRT) models to make the development of standardized patient reported outcomes possible, while reducing respondent burden.
The concepts behind the ASCQ-Me measures were based on a conceptual framework of how SCD affects adult lives which, in turn, was based on a comprehensive program of formative research including:
- Consumer Working Groups
- Literature Review
- Focus Groups
- Patient and Provider Critical Incident Interviews
- Patient Advisors
- Clinical Researcher Advisors
The resulting ASCQ-Me measures include questions enabling adults to describe their functioning and well-being according to seven topics:
- Emotional Impact
- Pain Episodes
- Pain Impact
- Medical History
- Sleep Impact
- Social Functioning Impact
- Stiffness Impact
Electronic Assessment
Learn about computer adaptive versions of ASCQ-Me.
User’s Manual
Learn more about ASCQ-Me by exploring the User’s Manual.
Translations
ASCQ-Me fixed-format questionnaires are available in a number of translations including Arabic, English, French, German, Italian, and Spanish. Please contact Dr. San Keller to learn which languages are currently available and how to access them.
